The weekend is here, no signs we will be going home but no one is saying we won't be going home either. Justin's drain tubes will need to come out; he will be taken to surgery, put under anesthesia and those annoying 18" of tubing will be taken out. No wonder he hates to move and there can't be any room for food with all of that stuffed in him. Time is vague in a hospital, of course when it is time for Justin to go downstairs for surgery, Darin is not here yet. I know I can do this but I sure wish he was here. As we are wheeling Justin's bed into the elevator he begins to get agitated, he knows something big is about to happen. We hold hands all the time, I know it doesn't hurt him for me to squeeze his little paw. An anesthesiologist, a nurse, Justin, me, and a very long, empty hall. Justin has had a stuffed, blue elephant for years; he is here with us too. I don't know how much Justin understands when they are talking to us, but I know he can feel things. We squeeze harder, please let him be asleep before I leave......they say "this won't take very long, we will bring him back up to his room, you can wait there." How can I wait there if I am holding his hand here? They are pushing the bed away, Justin is reaching for me, my heart hurts, the doors swing close. I try to focus on the maze to get back to his room. Oh, thank you God, Darin is here.
They bring Justin back, he is still sedated and on morphine so the rest of the day is spent sleeping. I think he already looks better. Finally, progress!
The kids and family have made it through the week. Everyone has made it to school, homework done, practices made, food keeps appearing at our house and everyone seems to be doing ok. It is not easy for Justin's siblings to come visit; he is not himself, it is unsettling for all of us. The weekend is here, we are all waiting for good news from the doctors.